There’s plenty going on in the world of mitochondrial disease, and you can learn all about our work and read the latest news articles and blogs from across all areas of our charity here.
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Research 3 October 2017
Supporting medical research into mitochondrial disease is a key part of our work at The Lily Foundation. It's consistent with our long term goal of finding a cure for mito, and also brings life-changing benefits to people who are living with the disease today. Starting this month, we're going to be bringing you more news about the research studies we fund, and introducing you to some of the doctors and scientists involved. We kick off here with a look at a promising study underway at University College London.
Awareness 3 October 2017
The Lily 'Bare Your Sole' campaign for Mitochondrial Disease Awareness Week was a big success, raising awareness of the genetic disorder in homes, schools, hospitals and businesses across the country.
Research 1 September 2017
A recent study has reported that levels of FGF-21 in blood could prove useful in the diagnosis of Mitochondrial Disease, leading to an improved diagnostic pathway that reduces the need for muscle biopsy
Personal stories 25 July 2017
Our thoughts and prayers are with Chris Gard, Connie Yates and of course their son Charlie Gard today, as they have been for the last eight months.
Research 17 July 2017
We’re excited to share some recent updates on the diagnosis and potential treatments of mitochondrial disease which were discussed at the Patient Meeting of Euromit 2017 in Cologne, Germany, recently.
Research 31 May 2017
Is there a link between mitochondrial disease and epilepsy? A recent study investigating the link between mitochondrial diseases and epilepsy found that one in five adult mitochondrial disease patients experience seizures.
Research 4 May 2017
Alison and Lyndsey from The Lily Foundation were in attendance at the tenth Neuromuscular Translational Conference in London recently, where there were a number of exciting updates on potential treatments to help in the fight against mitochondrial disease.
Research 4 May 2017
A research paper published last year investigated which movement disorders are seen in patients with mitochondrial disease and whether these could be linked to the underlying genetic error. Find out more.
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