There’s plenty going on in the world of mitochondrial disease, and you can learn all about our work and read the latest news articles and blogs from across all areas of our charity here.
From personal stories about families affected by the disease to the latest research projects and plenty more, why not sign up to our newsletters, and follow us on social media, to ensure you never miss a thing.
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Events 2 January 2018
Want to get fit for 2018? Instead of wasting money on an expensive gym membership, why not sign up to a Lily challenge and get fit fighting mito?
Research 27 December 2017
Ines Barbosa is a bioinformatician on the Lily Exome Sequencing Project, a landmark initiative that helps patients with mitochondrial disease discover the exact genetic cause of their illness. Since its launch in 2014 the project has been a huge success, identifying 32 new causative genes and providing 72% of patients tested with a confirmed or highly probable genetic diagnosis. We caught up with Ines at her lab in Guy's and St Thomas' Hospital to find out more about her work.
Events 27 December 2017
Sign up with a friend to a Lily Ultra Challenge event by February 11th and get a 2-for-1 discount on your registration fees!
Research 18 December 2017
Two Lily Foundation researchers have had their work published in a leading medical journal for the second time in two months.
Research 13 December 2017
A landmark study into the benefits of using a cholesterol-lowering drug to treat patients with mitochondrial disease is set to begin clinical trials in the UK.
Personal stories 4 December 2017
A teenage boy who suffers from mitochondrial disease enjoyed a day to remember after The Lily Foundation arranged for his family to meet stars from X-Factor.
Research 23 November 2017
Three young Lily-funded researchers have contributed to an article published in a respected academic journal. Lily research associates Ruth Glasgow, Kyle Thompson and Ines Barbosa were part of an international team whose findings were published in Neurogenetics.
Events 3 October 2017
Who needs the British Masters when we have our fabulous Lily Golf Day? This year's event, proved a big hit as usual, helped by blue skies and sunshine at the beautiful Croham Hurst Golf Club in Surrey.
Personal stories 3 October 2017
Congratulations to our daring duo Jon Milne and Sailor Swift, who have made a great start to their circumnavigation of the globe in aid of Lily Foundation. Jon and his teddy bear sidekick, who are sailing in the Clipper Round The World yacht race to raise awareness about mitochondrial disease, have already raised over £1000 on the first leg of their voyage.
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